Wednesday, March 20, 2013

Pull Out Your Purple!

Get out your PURPLE attire and get it pressed because on March 26th you should have no glitches when getting dressed. We are counting on you to don your purple-ness so together we can whisper to the world that epilepsy shouldn’t cause folks such a big fuss. Purple Day has been spreading GLOBAL Epilepsy awareness since 2008! 

According to the CDC Epilepsy results in an estimated annual cost of $15.5 billion in medical costs and lost or reduced earnings and production. Epilepsy can be caused by many different conditions that affect a person’s brain (e.g., stroke, brain tumor, central nervous system infection, head injury). Often no definite cause can be found. Epilepsy cannot be transmitted from person to person.
And then there is this thing called SUDEP, Sudden Unexpected Death in Epilepsy. Children with uncontrolled epilepsy or frequent seizures are at the highest risk for SUDEP and it accounts for 34% of all sudden deaths in children. Sadly, that’s about all we know about that.
And there is a whole other group overlooked; Veterans and active duty military personal have some very harsh epilepsy statistics to face. According to C.U.R.E. fifty-three percent of Vietnam War veterans with penetrating head injury developed epilepsy within 15 years. 1.64 million Soldiers have served in the current Iraq and Afghanistan conflicts; 320,000 of these soldiers will experience traumatic brain injury (TBI). Between 48,000 and 169,000 soldiers serving in Iraq and Afghanistan are expected to develop post-traumatic epilepsy (PTE).

It has no rhyme, reason or timeline; epilepsy can greet your family at any moment in one’s life. Ava and the 65 million others living with epilepsy appreciate you taking the time to learn and talk about epilepsy. Most importantly epilepsy advocates have an enormous aspiration to improve how people with epilepsy are perceived, accepted and valued in society.
Will you help us by wearing purple next Tuesday?

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