Tuesday, November 25, 2008

Confessions from a Supermom

Please enjoy this writing courtesy of Sam's Mom, Heather. Her blog is listed on my "Blog List" and her email is listed at the bottom of this posting should anyone feel inclined to drop her a line. I hope you are all fat, happy and free of relatives after this Thanksgiving holiday :)

To my dear friend Heather,

We will soon be drinking bottles of Vino again...venting our anger, enjoying some laughter and sharing our tears. Thank you for so brilliantly capturing in words the experiences we all share and the feelings they often evoke. I can't count the times I've heard each of the quoted statements you summed up so nicely below and please note, I love that funky cheese in a can!

Confessions from a Supermom

“You are such a great mother.”

This statement always takes me aback. I guess I should be flattered. Friends and family say it and I smile, thank them and try to change the subject. When I hear it from total strangers however, it makes me a little uncomfortable. Who are you? How long have you been watching us? Did I scratch my butt? Pick my nose? Make a disparaging remark to my husband? I am not used to the attention that comes with a special needs child. When I hear the great mother comment I am tempted to come back with something smart-assed. Really? ‘Cuz I just shotgunned a beer in the bathroom. Or Aww gee thanks, my parole officer thinks so too.

My favorite is “You are such a good mother for taking care of her.” Well thanks but, did I have a choice? She is after all my daughter and I love her more than oxygen, water or red wine but really, I didn’t sign up for tube feedings, seizures, therapy and the many issues that come with being Samantha’s mom. And I would give my right arm, left leg, heart and soul to make her better.

Am I still a great mother?

I am a mom. I have days when the T.V. is on, when Samantha is wiggling around on the floor, perhaps a little too long before being repositioned. I have nights; 2:00 in the morning when Samantha is still awake and I am wandering around the house raking my sleep-deprived brain for another strategy to get her to sleep. I curse God, rage at the heavens and console myself with yet another glass of wine.

“I will pray for you.”

I really do appreciate this one. Any healing thoughts sent off into the universe is a good thing. However, after a tough night when I have told the world what I think of their crappy divine plan for me, when I have flipped off the heavens with both fingers, I am really tempted to say. “Well thank you but you might want to wait a day or two; God and I are in the midst of a heavy duty argument. You might not get through.”

I did not write this as my pity party. Well, okay, maybe I did. Bring some Ritz crackers, and that really funky orange cheese in the squeeze can. We can talk about your pain, my pain, examine the ingredients of that funky orange cheese and perhaps the ingredients of our lives. As parents, as humans, as people in this world, we all have pain. Just because my pain, my daughter’s disability, is visible to the world doesn’t make anyone else’s pain any less real. It certainly doesn’t make me a better mother.

“That which doesn’t kill you, will make you stronger.”

I have evaluated the super-beings with super-human strength and they all have issues. The Incredible Hulk, major anger issues. King Kong, a great big monkey with an attachment disorder. Even Superman lived a life hiding his true identity; misunderstood and yearning to belong. I don’t want to be any stronger.

Because it’s just not fair is it? Whatever our pain may be; a disabled child, an ailing parent, cancer, divorce, foreclosure, it’s not the life we signed up for. When I imagined my married, parental life years ago it did not include anything messy or ugly. It did not include tough decisions. It did not include being such a grown up.

“Life is not fair.”

My Grandma, Emma Mae, used to say this to me when I didn’t get my way. My reaction would be to stomp my feet, throw a couple pillows around, pout in the corner. It still is but no one thinks it’s cute anymore. There are days that I’m doing the absolute best for my daughter. When I AM the Supermom and I am at peace with the world. Like all of us; there are days when I am ‘on’ when I ‘get’ my child and provide exactly what she needs from me. Those days I don’t care who is watching. I can smile and kindly respond to the attention. Those are good days.

Heather Schichtel is a free-lance writer, parent advocate and full time mom to her daughter Samantha. You can follow their story at www.samsmom-heathers.blogspot.com or contact Heather directly at heather.schichtel@gmail.com

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